I feel like getting a shirt with this printed on it. It was a blast, though. Sunshine had fun, her friends had fun, the teachers had fun. When I was growing up, we didn’t have things like this. I was totally blown away by all the work and effort that went in to making a … Continue reading »
Pay the toll…you had fun…
I hate how both of these illnesses require payment when I do something other than sleep all day. I am feeling pretty crappy today after actually getting out of the house and doing something other than going to a doctor’s appointment or to the grocery store. I went with my family, my cousin, his girlfriend … Continue reading »
Why can’t I sleep?
Fibromyalgia is cooperating with the steroids to rob me of sleep. Well, at least tonight. I have always had a bit of insomnia from time to time since I was a teenager. Fibromyalgia heightened this ailment and one time needed to be alleviated with Ambien. But recently things have been getting really “out of whack”. … Continue reading »
Sunshine’s nose is growing
We have now reached the age where Sunshine is learning the difference between lying and telling the truth. And true to form, the child is learning the hard way. Recently she has been telling minor “fibs”. She outright lied to my mom a few weeks ago when she was told to put her clean clothes … Continue reading »
Things I learned on vacation…
So I am back. It was a wonderful, amazing, beautiful, relaxing, hilarious trip. It was a ‘girls weekend’ including my mom, her friend, her friend’s daughter(who is a few years younger than me) and of course, Sunshine. Here is what I learned: 1) 12 hours is a LONG TIME to be sitting in a car. … Continue reading »
Financial ruin and other side effects of chronic illness
People who aren’t living with an illness that they have to manage every waking moment of every day have a difficult time understanding the plight of those who battle their issues every day. I am fortunate to have the love and support of my family (namely my parents and father-in-law). I can’t imagine what would … Continue reading »
Chronic illness doesn’t go on vacation
I am 4 days from the beach… Ahhhh….I can’t wait. I’m am incredibly fortunate that my mom has invited me and Sunshine to a “Mother’s-Daughter’s Weekend” to the beach with her friend and friend’s daughter. The beach has always been restorative for me. I don’t know what it is, I wasn’t born near the beach, … Continue reading »
Stick a needle in your eye
My brother, who is younger and a hockey player, told me that I was very brave and very strong the last time I talked to him. He said “I have no idea how you deal with the eye injections, I know I couldn’t” That means a lot coming from him. He is the big, … Continue reading »
Achoo!!
This really sucks. I still haven’t 100% recovered from the flu from hell, and now I have a cold that wants to live in my body forever. Saturday morning when I had a sore throat I could feel it coming on. But I still took Sunshine rock climbing (with her Girl Scout troop, I didn’t … Continue reading »
Guilt
There are all kinds of guilt. Catholic guilt, Jewish guilt, survivors guilt. What about chronic illness guilt? Today I am really feeling it. My husband is taking steps to get a better job (full time, with benefits) so that we don’t end up moving in with my parents. The thing is, he will also be … Continue reading »
