I finally had my appointment with my aunt’s rheumatologist. He has been her doc for 20+ years. He has also been the doc of a family friend for years as well. Both of these ladies have RA, my aunt also has lupus.
It’s tricky doing the second opinion thing. I still like my current rheumatologist, she is friendly, thorough, her office is close to my apartment. I just want to make sure all bases are covered. I want to make sure that this is what it is, as other physicians have come to different conclusions as to my diagnosis. I also want to make sure that methotrexate is the best plan of care.
I should write out my entire medical history and just hand it to doctors instead of trying to remember all of this shit. If it wasn’t for my husband, I would have left out significant parts of my history. Sometimes I forget what I’ve been through the last seven years. C.diff, dx with fibro, massive ear infections, now this saga.
All I want is answers. Exactly what is going on with my immune system and a better plan of care that doesn’t leave me feeling like crap.
Yes, my main complaint that drove me to seek care is resolving. My eyes have substantially improved. But I am unable to work as a nurse. The brain fog, word finding issues, stuttering, fatigue and increased pain have made working as I used to extremely difficult.
The pain. Oh the pain. It has significantly increased in the past two weeks. Knees, hips, wrists, fingers. Low back for the past two days. I did figure out it was my new (to me) couch. One of the couches has a recliner built in. When I lie down length wise, the mechanism for the recliner lines up perfectly with my lower back. I was in agony yesterday.
Better today. Only sore.
So after a lengthy discussion over my colorful health history, the new doc ordered labs and said that I should continue with my meds until he has further information.
I guess that is all I can hope for right now.
My husband made a good point during the lengthy discussion. I never seem to heal completely after a blow to my body. Each battle with an infection or injury has stayed with me or weakened me significantly. The c.diff nearly killed me. I have never been the same since. Last year I had a concussion. I still have vertigo. My ear drum ruptured from an infection last year. Added to the vertigo.
Agh! I need to quit thinking about this.
true life is stranger than fiction.. 