Winter is not my friend

Yes, I know, Texas doesn’t have a real “winter”.

Growing up in Pittsburgh for 25 years, I am acquainted with real “winter”, and that is why I despise it.

I know people with autoimmune, chronic pain, osteopathic conditions are usually cold intolerant.  And I am no different.

I guess it began in high school.  I went to school in a “modern” building with a closed in plan.  It was build in 1970.  Basically, no windows except for these 1 foot in width, floor to ceiling “windows” that could be tilted to “open”.  The walls were cinder block.  The heat regulation in that building was terrible.  I remember wearing my winter coat, gloves and a hat in class.  Sometimes you could even see your breath.  In chemistry class we would light the Bunsen burners for added heat. On other days it would be a tropical jungle, although those days were few and far between.  We would complain to the office, but they would say that they couldn’t do anything about it.

We also had to take swimming class.  In winter.  In that building.  I wonder if my gym teacher ever looked into the veracity of my excuses of having my period, everyday, for a month.

The house I grew up in was very old, build at the turn of the 20th century.  Very poor insulation and drafty.  So I am well acquainted with freezing all winter.

I remember visiting Texas once December.  I was flabbergasted that my cousins were wearing shorts one day.  In December.  Completely foreign to me.  In Pittsburgh, all shorts, short sleeves, bathing suits (unless you were doomed for gym class) were packed away in September.  But apparently in central Texas, you can pull those out year round!

In my late teens, early 20s I noticed the cold intolerance thing getting worse.  Even out of high school, I was always cold.  Its just the way I was.  I always needed an extra blanket on the bed, warm socks, warm pjs.  And I do get this way in the summer too, if the a/c is blasting.

What does it actually do?  It makes me hurt more.  My joints ache.  They are stiff and sore.  I’m slower.  My feet and hands and fingers won’t work properly.  It normally takes me awhile to get warmed up anyway, so if I do go out, I have to come in and get under blankets to physically warm my body and joints.

So with my diagnoses, my history, I have been miserable the past few days.  Yesterday had a low of 25 and a high of 59 (that is in *F).  Ick.

My husband loves it.  Says its “invigorating”.  Right.  If you’re a polar bear.  Give me my snuggie.

Insomnia…how I hate thee…

I found this gem on my computer screen this morning…when Sunshine woke me up.  In front of the laptop.  On the uncomfortable couch.  Looks like I found my cure. Enjoy!!


It’s 3 a.m…..and I will not bust into a Matchbox Twenty song..

Kudos to those of you who got the joke..

My sleep cycles have been off.  I have been “crashing” lately, meaning having those sleep spells on the weekends where I just fall asleep for three to four hours out of the blue.  So that leads to me staying up later at night.

And then I had the recent 15 hours sleep-a-thon, so that must have thrown me off.

I went steroid free for a week around 10 days ago due to lack of funds.  Because I am waking up later in the day (or at least getting out of bed later in the day) I have been taking my 3 mg of prednisone later in the day as well.

I have been screwing with the dosages of my medications, trying to take Lyrica every other day, cutting my topamax dosage.  So I know my body is pissed off that I’m screwing with its neurotransmitters.

Combine this with a plethora of thrilling, page turning reading material and it is no wonder that I am battling insomnia right now.

I guess I have the “luxury” of having insomnia.  Short of having to get Sunshine out the door, I really have no plans for tomorrow, other than breakfast with my parents.  I know I should make myself stay awake tomorrow, and hopefully get in to a more established rhythm, but I’m guessing that won’t work.

Sleep has always been an issue.  Since I was a teenager.  Only recently have I been able to have periods of a full nights rest.  But I go through phases like this, where I’m battling insomnia, or even just “poor ” sleep.

Its like this: from what I understand, fibromyalgia has an underlying sleep disorder to it.  Something with alpha wave intrusion.  Now I have never been tested for it, I have never been subjected to a sleep study, or even a run of the mill EEG, but this makes sense to me.  Sometimes, especially when I am without the Lyrica, I can only achieve a light level of sleep.  It’s comparable to what most people get when dozing on the couch: you can hear the TV, feel the furniture, are aware of people in the vicinity.  Dreams, if any, are fuzzy, like static on a TV.  I can’t seem to sink deeper to where my mind turns off and I am unaware of my surroundings.  Those nights I feel like I have been awake all night.  Like last night.

I took Ambien for years to treat this phenomenon.  I never had an adverse reaction to it.  I never sleep walked, sleep drove, sleep ate.  The most was I would forget conversations or actions that took place around the time I took the medication.  And that kind of sleep is DEEP.  Like “who am I and where am I” when you wake up sort of sleep.  ffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffffff           mrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrre                                                                     c