I hate how both of these illnesses require payment when I do something other than sleep all day.
I am feeling pretty crappy today after actually getting out of the house and doing something other than going to a doctor’s appointment or to the grocery store.
I went with my family, my cousin, his girlfriend and their friends to a freshwater pool here in Texas. I love going to these places around the city because they are so unique.
Deep Eddy pool used to be a swimming hole in the Colorado River. After some storm damage, it was decided that they would make an actual pool. They fill up the pool (in alternating sections) with fresh well water every other day.
The water is COLD!! A bit warmer than Barton Springs (which is spring fed and always at 68 degrees, even in 100 degree weather). But still freezing nonetheless. Feels amazing on a day in the high 90s.
To get to the pool, there is a huge, steep set of concrete stairs. That is probably what is contributing to my current situation.
And just being out in the sun and heat seems to sap my energy faster than anything. We were there for a little over three hours. And it was getting iffy for me as to whether or not I could make it up the stairs to head back to the car.
By the time I got home, I was feeling it. I didn’t burn, thank you 70 SPF, but my back, legs and head were killing me.
And I had to do the methotrexate last night, because I’m volunteering for a little while at one of Sunshine’s school events tomorrow and I didn’t want to be a zombie.
So today sucked. Horribly. Sunshine woke up, true to her name, at 6 a.m. I managed to get her to lay down with me while we listened to meditation music until 730.
I tried getting her fed and set up for the morning, but I was having difficulty walking and almost fell several times. So my husband got up with her this morning and I went to bed.
But he had to go to work for a few hours around midday. He came in and woke me up before he left. I couldn’t give Sunshine the attention she wanted today, and she wanted to go to the pool again. So my mom picked her up and took her to the pool in her neighborhood.
And I went back to bed. Noticing a trend here?
I finally woke up at 530 pm to put dinner in the oven. And I have been awake ever since.
My hockey team is on TV, they are in the Eastern Semifinals and I wanted to watch it on the big screen. Or else I would be back in bed.
So as soon as this game is over, I am running a warm bath and then heading back to bed.
The pain hasn’t been managed too well with the tramodol today. That is slightly scary for me. I need to combine it with Tylenol more often to get the antiinflammatory benefits. But with the elevated liver enzymes last month, I’m sparingly using all NSAIDS right now. Not that I can take anything other than Tylenol anyway, thank you G.I. tract.
My hands and my left knee are throbbing, in addition to my left hip/lower back. I’m not sure why I am having this pain, but I don’t like it.
I get blood drawn this week. Hopefully the levels look better. C-reactive protein was higher last month than the last test.
Positive thoughts? I have been eating healthier. We grow our own herbs, and with using oregano, basil and parsley I have been able to stop adding salt to my meat. I really haven’t fried anything in over a week. I’m eating more fruits and vegetables. I made a huge pot of greens yesterday, but I’m a novice at the flavoring, so they were really, really bitter. I was able to eat the carrots I put in the pot though. Only slightly bitter.
It’s amazing that the human body craves what it needs. For years I hated carrots, peppers, salads, etc. My parents weren’t very forceful with the veggies when I was younger. But I have noticed since I had the diagnosis of the autoimmune disease that my opposition to these foods is almost non-existent.
I have heard that your taste buds “mature” as you get older, but I think it is more of my body needing things and then craving that substance. Interesting.
Cooking is what is keeping me feeling at least somewhat useful around here. I have been making my husband wonderful dinners for the past few weeks. I have been trying out new spices and cooking techniques. Not bad for someone who was literally clueless at cooking a few years ago.
Can’t type much more, the fibro pain is also making itself known today as well. Just lightly touching areas of my body is causing searing pain. Example: I went to scratch my arm a second ago. I didn’t scratch hard, just enough to get rid of the itch. The area where I scratched is now throbbing. Fantastic.
I’m glad I got out yesterday. Makes me feel like I am still a part of the human race. I just hope next time the toll isn’t so high.